Today we are going to our third post op scan to check on the baby. We are attempting to get the train and walk the 10 mins from the train to UCLH to the appointment. But if this is too much then we’ll just taxi it. In the waiting room at the train station I …
Author Archives: thespinabifidababy
Feeling the strain
Its Saturday now and I’ve felt pretty pants today. Which is rubbish as Husband has had to look after the kids by himself today…I know how hard it is and how even just having someone to help entertain can really help. So I feel pretty useless. I’ve also felt a bit sick, with the baby …
Friday freak out, is there something wrong?
So now it is Friday and I am feeling less emotional again! But every time something happens I am sure it is something wrong. Even positive things like the baby moving are worrying me that maybe it’s getting ready to come out! I know it’ just me being crazy paranoid and that all wiggles are …
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Ultrasound at our local specialist hospital
At my first scan at our “local” hospital. It’s not really our local hospital but it is the closest one with the required specialists. Last night we had a bit of an emotional wobble. And to be honest I’m still not over it. I feel like even though we made the decision I am just …
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How many infections can I get?
Great news today from UCLH…the urine test they did on Tuesday when I was getting ready came back with two infections. Damn it, back on the phone tomorrow to get yet more drugs. Mother in law is also coming down tomorrow to stay for a week. Looking forward to seeing her, but again don’t want …
Recovery is exhausting
It’s now Friday and I have been home with the twins for two days. I honestly can’t describe how exhausting it is. I’m not allowed to pick them up or give them cuddles which is hard in itself. But I think the hardest part is that they don’t want me. They’ve been with Grandma and …
Home at last
I woke up in my own bed this morning. It felt amazing. Was really difficult to get comfy, but I was soooo tired it didn’t matter. As soon as I woke up uncomfortable I would roll into a better position and go to sleep. Weirdly though my body clock has changed to waking up at …
Time to be discharged
I am on cloud 9. Our little bubby behaved so well during the scan and let them get all the measurements needed. Ventricles are back down to 11 and 10 (l and r) so back in the normal range really!!!!! This is amazing news. I feel like I could actually cry. I could not have …
Post Surgery Ultrasound
Time for our post surgery scan! I am very excited/nervous/anxious to see how the surgery has affected things. Fingers crossed the ventricles have reduced and baby is doing well! Can’t expect too much at this stage as it has only been a week but any glimmer of hope will be amazing. My husband has packed …
Post-op MRI scan
I got wheeled down for my MRI, I’m sure these hospital porters get odder each time I encounter one. This guy was friends with everyone! The MRI didn’t go quite to plan. I went in positive thinking it would be fine, I had coped really well at my last one. This time I wasn’t spoken …
Spina Bifida Baby 