Spina Bifida Baby Journal

This was the moment we found out there may be issues with our baby.  Our 20 week scan went as everyone else might expect. We were so excited to be finding out if we were having a little boy or a little girl. We didn’t actually think about all the other measurements and checks that… Read more

I can’t believe I am writing this already, but Max is 1 next week! Today it is his year review at Great Ormond Street Hospital. Only one parent is allowed to go with him and obviously face coverings must be worn in the hospital due to Covid. So we decided it would be me to… Read more

Yesterday was finally our MRI day! We got into London early and had some breakfast before heading over to the Nightingale ward at GOSH. Max wasn’t allowed any food from 9.30am and he normally feeds every 2/3 hours in the morning. So we were using every tactic we had up our sleeves to keep him… Read more