My mum has come to our rescue (yet again) and is having the twins today whilst we head up go London with Max for his head scan and consultants appointment. Hoping that they will confirm everything is OK and that it is just a growth spurt. But you never know. Trying to stay positive!
We walked to the hospital and decided to get here early to have some lunch. End up at a lovely hotel, Burr and Co restaurant. I had a beetroot salad and glass of vino whilst my husband had the “best burger he’s ever had”. Going to have dome dessert, because why not turn it into a date, then head over to find our bearings at GOSH.
So we just had the scans and now have to wait for the consultants appointment. It’s only an hour and half but we’ve been waiting for 10 mins and it feels like forever already. Annoyingly she didn’t have any of the previous scan data so came back in to tell us what she assumed was good news. “It is slightly inflated but not much so I’m sure the consultant will run through it all with you.” Given that they were completely reduced and well under the normal region after birth. That isn’t really the great news she thought it was. My husbands not feeling too happy about it and now we are both just sat anxiously waiting to find out what us going on. In the cafe we saw some of the play areas they have, my twins would think they were on holiday here! They have a giant xylophone that wraps around the cafe. It looks awesome! (Excuse the reflection!)
We’ve just had our consultants appointment and it has gone amazingly. He said the scans look fine, that they would expect to see some increase especially in head circumference but that it should plateau in the next few weeks. He also looked at all his movements and was happy we as we are with them. He even managed to get his toes to move! Saying that he also said he didn’t see much of a difference in leg strength either. All of leg movements and reflexes worked though! Yes, yes, yes!!!!!!
My husband has instantly relaxed, we are both in that weird state of emotional but relieved/disbelief. On the train home now to hopefully see the twins before their bed time.
Have the dye test booked in for November, have been asked to book in another head scan locally if possible for 2/3 weeks and ask the midwife to check head circumference and just keep an eye on everything.
Plan of action sorted! Now get me a blood large glass if wine and a sofa to collapse on please!
Spina Bifida Baby 