So the Health Visitor came round today and seemed to have tried to get a grasp on what needed to be done for our little one.
She had called GOSH to chase up our referral and also ask for guidance on what is needed locally. They basically said they only received our referral this week so are working on getting an appointment in the next two weeks.
We ran through lots of different things, like hip scans as he was a c-section baby, jaundice checks if needed etc…
Then she suggested doing a head circumfrence check as the midwife did one last week but would be good to have a starting point for her.
Cue panic.
The HC has increased by 2.4cm in a week (if you take the midwifes measurements) and has gone up from the 50th centile to the 91st centile since birth and last week….
She needed to call up GOSH to see what they say about this, so rang us back to tell us GODH were aware and would be calling me this afternoon.
We went out for lunch as planned to try and remain calm to some degree. Despite looking tired as hell and having eyebrows the size of slugs, I even got a first public breastfeed photo in 😉
But I still hadn’t heard back from GOSH by 10 to 4. So I rang them when on way home, the Neuro has said he wants to see us fairly urgently, but the secretary was on her way home so not able to deal with it until tomorrow morning.
I know this should mean that we don’t need to panic, but it also means we are now waiting over night so I’m worried. I was hoping they were going to call back with an appointment for us tomorrow to check him over and get his head scanned, but looks like it is more likely to be later this week/next week now.
I shouldn’t be panicking, it is probably nothing. It is probably related to a growth spurt. He has also increased in weight by a percentile. But I also can’t help feeling like this isn’t fair. I shouldn’t have to have these sort of worries, he is only 3 weeks old. My poor baby 😦
Spina Bifida Baby 