Sorry I’ve been a bit quiet lately. My world has been a whirlwind of midwives, twins, feeding and changing. We’ve been home almost two weeks now!!! We’ve even been discharged from the midwives into the health visitors care now. When I saw the midwives they picked up on a haematoma on my stomach, they thought it was from the scar/operation. I couldn’t feel it as it was in the massive area that is completely numb now. But when I touched it was rock hard, and yellow. So they came back to check again and decided I should go to the labour ward at my local hospital to discuss it.
When we went they took forever to see me as the Dr was having to go in for category 1 c sections. Mine was a category 2 so the poor Dr was in an emergency. But it meant by the time I was seen baby was really hungry, the twins had been bathed and gotten ready for bed by my mum and the pharmacy was closed. The consultant thinks it is from the blood thinning injections and wasn’t too worried but wanted me to take antibiotics to ensure there wasn’t any infection.
We were told we could get them from any hospital including both our local hospitals so my husband went to get them after dropping the twins at nursery and discovered they are part of a different trust we couldn’t get them from there so drove all the way to the other hospital instead. Nightmare! We also had a health visitor come to see us. They didn’t seem to know anything regarding what they needed to check for spina bifida, so I think I’m going to have to push them to get in contact with the specialists and pull their finger out though. They didn’t seem to know about checking the head circumference which I thought was standard.
Anything else I should be asking them to do?
We’ve also met all of my side of the family, just my husbands family to meet now. Going to try and go for a visit to husbands mum this week if we can. We have had lots of family time, walks, park trips and generally making the most of Daddy’s paternity leave. Not sure how I am going to cope when he is back to work. Really worried about it! Also having a few emotional moments with bubbies movements.
He has a bit of horrible nappy rash so we were advised to put him on his front on a towel without a nappy. When we did it he started using his legs to push himself forward. I can’t believe how strong his legs are. It just made me emotional. Why o why is this happening??? I really wish I could take it away. I keep seeping into false security where he is a baby so I don’t see him as any different, then BAM I’ll suddenly have a moment of realisation, how hard it is going to be and how unfair it is. I’ll get all emotional and just want to take it away for him. So so proud of him and how strong his legs are but that in itself is upsetting as I know it’s unlikely to be a reality and he won’t be able to do all the things his brother can or other kids his age.
It’s so unfair.
Spina Bifida Baby 