On Monday we still hadn’t heard back about another date. We were emailing UCLH from 7am where we were told if we wanted to go ahead tomorrow we needed to go in for blood tests today and they still hadn’t heard about the later date.
At this point our decision was made. Without even thinking about it we got sorted to go to London and made the journey back up to UCLH.
We were going ahead with the surgery!
However when we got there, the drs were all at a conference and the FMU team weren’t sure what we needed. After waiting for an hour, we got a call to let us know they now can’t do the surgery tomorrow and we are now aiming for the 2nd July…which all the drs have confirmed they are free on.
We had geared ourselves up for this so were massively deflated. But, it meant two more weeks with our babies and two more weeks for our baby to get stronger before the op!
Time to turn around and go home to wait out the two weeks!
Talk about confusion!
Spina Bifida Baby 